Ethical-legal aspects of personalized medicine
3 important questions on Ethical-legal aspects of personalized medicine
Are the current ethic documents applicable for personalized medicine?
No. The common studies they are written on are not the studies used for personalized medicine. ![]()
Is commercial use of health data acceptable?
“Provable and sufficient public benefit” was the first test that people applied to decide whether commercial uses of data were acceptable.4 Only when this test was passed were other factors (such as who was doing the work or what safeguards were in place) taken into account.
Privacy of personal data is important on two levels?
Intrinsic (deontology): needed for social context, fundamental values
Instrumental (consequentialism): impact on insurance, risk of discrimination, employment, losing trust in institutions
Instrumental (consequentialism): impact on insurance, risk of discrimination, employment, losing trust in institutions
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